Your health records in several languages? Not as easy as it sounds!

Since the creation of the project, we decided to make Andaman7 available in several languages to maximize our users’ comfort. It seems only natural to manage your health in your native language.

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But having our app available in several languages is only a small part of the solution… The complete “medical content” should also be translated … and that’s where the troubles begin.

If the medical content is codified (meaning a user cannot write whatever she wants: she has to make a choice in a list of codes), it is possible to translate it automatically. As an example, let’s take simple fields like the “gender” field: the “female” word is stored as a code, and therefore is easily and automatically translated into other languages. For other fields, it gets less obvious.

One can codify all illnesses, symptoms, medications… based on existing codification systems. It would therefore be possible for other fields to be automatically translated but this would bring up 2 main problems:

  1. There are various medical coding standards (ICD, ICPC, SNOMED, LOINC …) but none of them has been unanimously chosen (yet)…making it complicated to commit to one of them.
  2. Making a majority of fields codified means less freedom for the users and a much heavier process to input their data than “free text” fields.

Nowadays, free translation tools are widely available and make an automatic translation process possible… but far from perfect. The inaccuracies of general translation systems like “Google translate” and others quickly make you realize that in a field such as health and medicine, you just can’t risk translation misinterpretations.

So, an immediate translation of all content of our app is not something we can offer right now. However, we think this could be the case in a near future, when technology will have made sufficient progress in that field.

Meanwhile, just being able to change the language of the application and translating the codified items is already useful. If you go in a country speaking a different language, you can change the language of Andaman7 before showing your medical file to a local doctor. Even if the contents are not all translated, having fields in their own language will allow the physicians to navigate a little better and understand at least partially the content (because from one language to another, there sometimes are similarities in the technical terms being used).

Managing medical data has always been hard. And translating even harder. But we’re making progress fast. Feel free to install Andaman7 (free on AppStore and Google Play) and tell us if we are doing a good job.

Our mission is “Contribute to the good health of every human being, all over the world”.

Vincent Keunen

Patient and entrepreneur
Founder and CEO of Andaman7
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When health technology leaders meet patient reality

A few months ago, I read the terrible news that Bill McDermott, CEO of SAP, lost his eye in an accident at a friend’s party. Forced to spend time in hospital, he realized that information management has a lot of room for improvement. Learn more about his experience here: http://bits.blogs.nytimes.com/2015/11/01/sap-chief-mcdermott-embarks-on-health-care-push-after-losing-his-eye  
Like most patients, he really had a hard time. Medical Information Technology (IT) tools are just not up to the task. “There were digital files of M.R.I.s, data from my surgery in the trauma unit and scans from the emergency response team that never went into the my health record.” he said.

It was shocking to read his comments because it is exactly the same way that I felt when I spent a year in hospital in 2007 taking care of my young son diagnosed with bone cancer. The medical information that we needed, as a family, was difficult to manage, impossible to exchange, and the patient was never in the loop. Unfortunately, there haven’t been significant of improvements in nearly 10 years.

I immediately invited him to join me in the club of IT entrepreneurs turned patients that are dedicated to synchronizing health data for everyone.

Bill accepted my invitation! He found time in his busy schedule to have a truly human discussion with me. He suggested that I meet with Werner Eberhardt, the director of personal medicine in SAP’s Walldorf, Germany, Headquarters.

Werner Eberhardt, Michael Schaper, Frank Kilian and Stephan Schindewolf, and I had an important talk about SAP’s and Andaman7’s commitment and passion for developing software for healthcare, both for business reasons and purely helping people. We also discussed how the health sector is being disrupted, the great new possibilities for patient empowerment through health technology.

SAP is a very large company and I run Andaman7, a tiny startup. We’re worlds apart in size but closely aligned in our mission to contribute directly to improving and sharing data for better health.

Please help us realize our mission by becoming an Andaman7 member. The Andaman7 App is free and available at http://www.andaman7.com or in the App Store. Your ideas and feedback about your experience using our App will be used to make on-going improvements.

My thanks to SAP, Andaman7 Members, patients and health care providers who are working to realize better health for everyone.

Vincent Keunen, Andaman7 CEO

@andaman7  @vincentkeunen  @BillRMcDermott @sap @SAP_Healthcare @SAPDEHealthcare

Open Letter to SAP CEO Bill McDermott : Welcome to the club :-/

Dear Mr McDermott,

I am very sorry for your recent eye accident. I just read several articles on various online publications about it. I particularly appreciate the way you manage that adverse event… “It’s important to stand back up again, if you fall down”. And you seem to wish to push SAP into more healthcare projects.  Good!

Welcome to the club, M McDermott… I am a 51 years old entrepreneur and 8 years ago, I was diagnosed with blood cancer (leukemia). And as you say: “I’m still alive.” I am very fortunate to be treated by a magical pill called Glivec, from Novartis.  The same year, 2007, my son Pierre, then 10 years old, was diagnosed with bone cancer.  Two cancers in the family, at 3 months interval.  No fun.  But he is also alive today.  He lost his leg to the cancer, but he’s still enjoying life, sports, friends… His whole story is at pierre.keunen.net

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Last year, I was fortunate enough to sell my software company Manex to Lampiris, one of the new green energy players in Belgium. Yes – we are neighbors Germany – Belgium.

So I decided last year to invest some of my money in a new, hopefully disruptive project to improve healthcare too.  Like you, when we were in hospitals for my son and I (more than one year in our case), I realized that there is still a lot of work to do to make sure doctors, patients, and all related health care practitioners have the right information at the right time – while still preserving privacy.

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So I used my expertise from 3 large scale successful projects in Belgium (in EHR and secure medical messaging) to build a new solution that I called Andaman7.  Andaman is an island that, according to wikipedia, was isolated from the rest of the world for a long time.  Pretty similar to the current medical IT situation.  And the 7 is for HL7, but also 2007…  that famous year for our family.  Andaman7, the company, is a 1 year old startup but we’ve been working for 3 years on the technology.  We just raised our first 1.3M€.

So welcome to the club!

And if you see collaboration opportunities, let’s talk.  Small can help big, big can help small.  :)

Vincent Keunen

vincent.keunen@andaman7.com

Uber? Je suis POUR…

Dans la mesure où Uber respecte les lois (ce qui est généralement le cas et qui doit être surveillé), je dis oui à Uber – j’ai déjà pu expérimenter plus de 20 fois l’excellente qualité de leur service. Et cette qualité était présente dans les différents pays où j’ai utilisé Uber.

Uber logoJe suis POUR une saine concurrence, je suis POUR encourager les “Uber drivers” qui se prennent en main et décident de travailler courageusement pour gagner leur vie et qui fournissent un excellent service (1). Je suis également POUR la confiance et la proximité que Uber restaure dans nos vies grâce à leur système de cotation transparente des conducteurs et des passagers (tout le monde est-il prêt à être ainsi évalué ???)(2). Cela nous permet de retrouver les bonnes choses des “villages du passé” qui, aujourd’hui, disparaissent quand l’anonymat des grandes villes se développe. Uber est un réel progrès, non seulement pour le transport, mais aussi pour une meilleure vie collaborative et respectueuse de tous.

Tout changement est difficile et comporte des désavantages. Soyons courageux, voyons les avantages et allons de l’avant quand le progrès améliore nos vies collectivement. C’est l’occasion aussi pour ceux qui sont mis sur la sellette (vous avez dit “taxi”?) de se remettre en question. Pourquoi Uber se développe-t-il? Ai-je toujours fourni un bon service à mes clients? Comment puis-je améliorer le service que je rends?…

Allons de l’avant!

Signez la pétition en faveur de Uber en cliquant ici.

Autre témoignage: https://vincent.keunen.net/2014/11/21/uber-bravo/

(1) Deux exemples de “Uber drivers” que j’ai eus:

  • Une jeune dame d’origine africaine, ayant fui son pays et hébergée au Canada, suivait courageusement des études de médecine; dès qu’elle n’avait pas cours, elle activait son service “Uber driver” et faisait quelques courses pour récolter l’argent qui lui permettait de poursuivre ses études…  Une futur médecin conductrice de Uber…  Je dis “bravo”!
  • Une dame plus agée mais encore en très bonne forme, très dynamique, réalisait des voyages Uber pour “sortir de chez elle, rencontrer des gens et avoir un complément à sa pension un peu faible”… Elle ne faisait qu’une ou deux courses par jour.  Son service était génial, même “mignon”, tellement elle s’appliquait.  J’ai adoré.

(2) Pour ceux qui ne savent pas, chaque passager Uber est invité à coter son conducteur et chaque conducteur est invité à coter son passager.  Je vous assure que cela pousse tout le monde à être plus poli et plus respectueux…  Un peu comme quand toutes les personnes qu’on rencontrait étaient connues car du même village…

Andaman7 – Connecting doctors and patients

(Version française de ce texte ici)

Those who know me personally remember that 2007 was a difficult year for our family. In March, I learned that I was suffering from leukaemia (blood cancer, CML — I was 43 years old) and just three months later, our son, Pierre, was diagnosed with Ewing sarcoma (bone cancer) at 10 years old. More information on his blog.

Today it is 2014, 7 years later, and we are both here and in good health. Pierre lost a leg (he was amputated below the knee) and every day I take a magic pill called Gleevec. We are, therefore, both survivors of cancer. This shows how modern medicine is truly of excellent quality, and is continuing to improve quickly.

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However, during Pierre’s treatment (it lasted one year, which involved many doctors and several hospitals) I witnessed first hand how difficult the medical information management was. Being myself a software engineer, I was particularly concerned with the lack of quality in the handling of information; I even felt a little responsible for it. In fact, I have participated in various large medical IT projects: secure medical messaging systems meXi and Medibridge in Belgium (15,000 physicians, hospitals, and laboratories) and a large medical / prevention records system for Idewe, managing more than 400,000 workers’ health. Despite all of this, information in the medical world seems significantly behind.

Therefore, I decided to turn my little stone into a building by starting a new project: Andaman7.

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During Pierre’s year of treatment, here are the main problems that we came across:

  • Many medical dossiers are still in the form of print, so:
    • It is almost impossible to transmit them, either between a hospital and a generalist, or simply to another hospital
    • There is a significant risk of loss—who is making backup copies of paper?
    • It is almost impossible to find information quickly—who has time to seek a sheet from a pile of 500 papers? Surely not a doctor, often overworked.
  • When I accompanied Pierre to another hospital, 100 km from our original hospital (because only this one had the x-ray therapy for children), the doctors in this hospital had almost no information about Pierre… In the same aspect, the information that I had received at this hospital could not be easily recorded or passed on to our original physicians (our oncologist, our general doctor). If I could have had one copy of Pierre’s medical file to transmit it, and the ability to add some notes… Of course I am no doctor, but I am capable of writing down what a doctor has told me to pass it on.
  • When I went to ask for a second opinion in Paris, our excellent oncologist (Dr. Claire Hoyoux) was very helpful and open, and even assembled an extract of the dossier for Paris. This really helped confirm the diagnosis, but at the price of extra work for her. If Pierre’s dossier (or a portion of it) had been able to be transmitted, everyone could have saved valuable time.
  • On the eve of Pierre’s amputation, a doctor had to prepare the operation. Not having access to the file, he asked Pierre if his last blood test had been good… On the eve of a “small” operation such as an amputation, it seems to me that asking this kind of question to a 10 year old child was a little light. With the chemotherapy and all, it was important to know whether his coagulation was normal (among other things)—but this doctor had no access to the information.

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The idea of the project is, therefore, to improve the storage of medical information and facilitate access and sharing, while preserving confidentiality. This last point is extremely important to me, obviously, but not enough to harm the quality of care, of course.😉

The objectives of the project are as follows:

  • Benefit from the wave of mobile devices (tablets and smartphones) that allow much more user-friendly information: touchscreen interface, mobility, voice commands and dictation, excellent communication skills…
  • Allow patients to participate in their own healing: patient involvement is desired by modern doctors, and by a number of “informed” patients—it simply improves the quality of care, several scientific studies prove it.
  • Allow physicians to share data between themselves in a simple but secure and traceable manner: hospitals, exchanges between specialists and general doctors, exchanges between physicians and other people such as home nurses, physiotherapists,…
  • Allow the patient access to his file and the ability to complete it with supplementary information: medication side effects, documents and information provided by other doctors…
  • Allow the patient to keep a copy of the file: for trips abroad, to follow his/her vaccinations, to share children files between separated parents, to gather important documents…

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Andaman7 therefore consists of a combination of two mobile applications. One for the doctor or any other health professional, to manage all patients records. The other for the patient, allowing him to manage his own medical record (and possibly that of his children or elderly parents). No medical information resides on servers (nothing in the cloud)—all will be retained on mobile devices and in existing medical IT systems. This avoids the “big brother problem,” threats on medical confidentiality and greatly reduces the risks associated with data security. No data is shared by default. Everyone is free to share or not, a part or all, of the data it manages. No one will be forced to receive other people’s data (requires a prior acceptance). Everyone is responsible to comply with the rules of their country and to the requirements of their local order of physicians.

This is a social project, so the application is free and will always remain so for both health professionals and patients. We will cover the operating costs by later offering advanced modules for those who want them.

So, no obligation, but modern and secure technologies for those who want to advance in medicine of the twentieth…um, of the twenty-first century.🙂

If you want to participate in this (r)evolution, join us at www.andaman7.com. Install the application and tell me what you think (vincent.keunen@andaman7.com). We are open to any and all suggestions.

Thank you!

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A few press articles on Andaman7 : http://bit.ly/a7allPress

TEDx Liège video : http://bit.ly/tedxvk

Anti Cancer foods – Richard Beliveau

Get the book at: http://amzn.com/0771011350
En français: Les aliments contre le cancer
Excerpt. © Reprinted by permission. All rights reserved.

Cancer prevention facts to add to your diet

  • Approximately one third of all cancers are directly related to diet.
Book: Foods that fight cancer

Book: Foods that fight cancer

  • A diet containing three or four weekly servings of broccoli, nothing too excessive, was shown to be sufficient to protect individuals from colon polyps.
  • Cruciferous vegetables (brussel sprouts, broccoli, cabbage, cauliflower, kale) should be lightly cooked and thoroughly chewed when eaten in order to fully benefit from their anti-cancer potential. Chewing releases the active molecules.
  • Freshly crushed garlic is by far the best source of anti-cancer compounds and should be preferred over supplements.
  • The key to benefiting from the anti-cancer effects of soy lies in consuming about 50 grams per day of the whole food, such as raw (edamame) or dry roasted soybeans. Supplements containing isoflavones are not an acceptable alternative to the whole food and should be avoided.
  • Colon cancer appears to be one of the cancers on which curcumin may have the greatest positive impact. The daily addition of a teaspoon of turmeric to soups, salad dressings, or pasta dishes is a simple way of providing curcumin intake sufficient to prevent the development if cancer.
  • Green Tea contains large amounts of catechins, compounds that boast many anti-cancer properties. To maximize the preventative effects afforded by tea, select Japanese green teas, allow for an eight-to-ten minute brewing period and always drink freshly brewed tea, and avoiding Thermoses.
  • Eating cranberries should be preferred over drinking cranberry juice.
  • The best way to increase omega-3 levels in diet is to eat fatty fish (wild salmon, sardines, and mackerel) once or twice a week or add one tablespoon of freshly-milled flax seeds to your breakfast cereal.
  • Eating two tomato sauce-based meals per week may lower your risk of developing prostate cancer by up to 25%.
  • Citrus fruits are essential foods in cancer prevention: for their capacity to act directly on cancerous cells as well as their potential for enhancing the anti-cancer effects of other phytochemical compounds present in diet.
Richard Beliveau

Richard Beliveau

  • The resveratrol present in red wine possesses powerful anti-cancer activity which may be responsible for the beneficial effects of wine on the prevention of certain cancers. Grape juice and cranberry juice contains resveratrol but at levels ten times less than red wine.
  • The daily consumption of 40 grams of dark chocolate (chocolate containing 70% cocoa mass) may have definite health benefits and should replace or reduce that of sugar- and fat-filled candies with no phytochemical content.
  • Many herbs and spices used as seasonings, in particular ginger contain large quantities of molecules that act as anti-inflammatory compounds, which also reduce the risks of developing certain chronic diseases.
  • Instead of replacing butter with margarine, use olive oil as much as possible as a source of dietary fat; you will benefit from its healthful lipids knowing that it also possesses anti-cancer properties of its own.

This is just a summary.  It’s good to read the book to get a better understanding of why all these foods have an impact on cancer – when we understand better, we are more efficient at adapting our diet correctly.

PS: If you already have cancer, ask your doctor first – but make sure your doctor is open to “global therapy”, ie modern medicine + diet + alternative means.
PS2: These foods will not cure your cancer alone – modern medicine is very efficient in curing cancer (more than 50% of cancers can be cured and it’s improving); but these foods will significantly improve your chances of success.

Vincent

Can we eat to starve cancer?

There is a very interesting TED talk on how we can significantly improve cancer treatments and reduce cancer appearance “simply” by adapting our diet.  (There is a transcript in 36 languages).

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I was particularly happy to hear about all the progress around that subject as well as the numerous scientific and experimental evidence that has been built in the last few years. David Servan-Schreiber was right quite a few years in advance, so his book “Anti-cancer” remains a very good read if you are concerned – or if you wish to reduce the risk of being concerned…

I mention that book and a few others on my previous blog post “Anti-cancer tips“.

I also wrote a blog post on good books on cancer, but it’s in French.

Here is a short summary of the video if you are in a hurry;

  • Angiogenesis = proliferation of blood vessels (ex: in a woman’s uterus each month, to repare damaged tissues and… to feed cancer tumors);
  • All cancers need angiogenesis to grow;
  • There are more and more medications targeted at limiting angiogenesis, so cancer treatment is improving;
  • The author mentions cancer treatment, but also prevention… and relapse avoidance;
  • The vast majority of cancer causes are related to “environment” – and diet is a significant one:

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  • One can think about “what to remove from our diet”, but also about “what we can add to our diet” (which may be easier if you think about fruits, colored vegetables, cabbage, red wine…);
  • Some foods are very good for angiogenesis (green tea, red wine (one glass per day), strawberry,…) but combining foods helps boost their beneficial effects.

The video does not go deep into what foods are good.  For that, I refer you to Foods that fight cancer by Richard Beliveau.